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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Rose, That's great you have chosen the one you feel will make a difference. I wish you every success with it. It's a mine field out there with all the different drugs, but when you find one which helps it makes all the difference. Have a lovely Christmas and a Happy New Year to You and your family. And a positive outcome for you. Lorna x 
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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i've just been reading through the Drugs section,
i have an appointment brought forward for me to the 26th January.
i'm not doing that well on Methotrexate ( convinced it's not helping with my sleep pattern ) and Hydroxy. i'm not in a lot of pain but the RA is active.
spoke to my Rheumy Nurse yesterday and she said the next step is Anti-Tnf's, which the Consultant also suggested in December but i had to try Hyroxy to have failed on two.
feeling anxious about it as i was with starting Methotrexate ... but i can't fault the support my Rheumy Department has given me.
also got some leaflets i picked up from the NRAS meeting i went to last September.
no idea what Drug will be adviced yet or if you get the choice.
it seems Humira has been around the longest though.
Suzanne x
P.S. to Rose,
have you started on Humira yet..?
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Suzanne
Sorry I have not had a laptop(it died on me) Got a new one and my
sister in law sorted it for me today. So now up and running. Just poorer by £350. . . .
I hope that you are able to stay on MTX and that the Hydrox works for you as you don't
want to go on TNF treatment unless absolut necessary. I have been on my previous
DMARDS since Nov 2008 so I have tried a lot of diff ones .
Still not got a date yet I really hope I hear within the next 2 weeks. (I have had my
2 councilling sessions) . Not looking forward to it though.
As you say there are so many diff drugs out there. The only reason I thought about
Humira was as it had been about for so long. As they all appear to have similar
side effects and what suits one person will not suit another.
Good luck
Rose
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
thanks for the reply ... have posted on your new Laptop Thread as saw that one first.
interesting in what you say about not going onto Anti-TNF's ... an anxious time ahead for me again i think. i have no idea about them yet.
i'll keep you posted after my appointment on the 26th January,
welcome back,
Suzanne x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello All
Within the last hour I have had a telephone call to say my Humira drugs will be delivered
2nd February. After delivery the nurse will ring me to arrange a date then.
So getting there now. Oh I so hope this drug is great for me.
Rose
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
fantastic news i really hope they work for you too.
i went for my Appointment this morning, have to back back in one month for second lot of Tests then i'll be going onto Anti-TFN's as well, i've already met the criteria on this first Test ... my Rheumy Nurse thinks it will be Cimzia.
a lot to take in and absorb, feeling tearful like i did at the start of being diagnosed and very tired.
i'll post my own Thread once i know what's what with me.
let us know how you are geting on Rose, everything crossed here for you.
take care,
Suzanne x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Dont feel down Suzanne, I am sure things will turn our fine for you.
It is difficult I know and not sure how things will turn out either -
post under your 'own heading'.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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That's great news that you will soon be getting the humira Rose.
I hope it works really well for you.
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Any news yet Rose? Hope you hear soon and can get started. How are you doing? XX Ailsa
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Ailsa
The delivery of the drugs is Wednesday so I presume I will hear about when the nurse
attending to be within the next week.
Sorry you were so tired but pleased that you do not have the Hospital run to do at the moment.
Rose
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello All,
Well my humira has arrived gone into fridge together with a box for the syringes.
Getting there now awaiting nurse to contact me and also I understand I should
have a big A4 wallet according to chap that delivered. So wait and see now.
Rose x
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Rose
Good luck with the humira and really hope it does the job! Im going to see anti tnf nurse tuesday and have to decide what to take but really havent got a clue! Will follow you with interest! Take care xx
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Rank: Advanced Member  Groups: Registered
Joined: 6/18/2010 Posts: 351 Location: Herne Bay Kent
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Hi Rose So pleased you have finally had the delivery of your humira. Hope it does everything you want it to. Best wishes Sue 
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Rose Great news! Hope they contact you soon and you can get on with the job! The box for the syringes ... is that the sharps bin? If so you don't need to stick that in the fridge, it can go in any safe place. Mine sits on top of the bathroom cabinet. Blimey an A4 wallet, are they expecting you to take a course in Humira? I got an instruction leaflet, no wallet, no nurse  Heyho it looks as though things are improving! Good luck Rose, I really hope this is the drug for you. Thinking about you, keep us posted Lyn x PS Are you coming up to Stratford Upon Avon for the meet up now it's nearer to you? It would be lovely to meet you! x
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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That's good Rose - you are part way there now! Hope the nurse contacts you soon and you can get going with the Humira. Good luck. Here's hoping for a big improvement in how you feel very soon. XX Ailsa
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
well you're on your way,
good luck with it ... i too will be looking forward to hearing how you are getting on,
although it will be another couple of months before i go onto them as have one more session with the Rheumy Nurse first.
really hope this is the one that works for you Rose x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Thanks all for good wishes
Lynn = I am afraid I am unable to go as have a wedding to go to . A shame yes would have
been great to meet people who I am now be friending. Enjoy though one and all
Rose
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Any word from the nurse yet Rose? Hope you can get started soon. I think my 2nd injection perked me up a bit (so I did loads yesterday and today I have to sit between every job!) Hope you are having a good weekend xx Ailsa
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Still no word from the Nurse will leave till Wed (that will be a week ) and then I will chase
them. Glad that you doing well Ailsa great news
Rose
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Hi Rose - just wondering if you got any response from the nurse? It does seem ridiculous not to be starting when you have the drugs at the ready, just for the want of a 30 mins appointment!
Sorry to hear that work is being difficult for you. I would have thought they would have to wait for the effects of this new treatment to kick in before they could suggest (or make you feel) that you should step down. make sure you keep a log of everything and speak to your union Rep if there are thinhs that you are unhappy about. Let us know how you ge on XX Ailsa
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